The Medical Mom.

Have you ever been so tired that the taste of cheap coffee seems like a blessing?  Have you, looking into the mirror, not been able to remember the last time you showered or even brushed your hair?  Have you ever cried in a doctor’s office, finally letting go of all that stress you’ve been carrying so long?

The medical mama has.

She’s held her child as they’ve screamed in pain from an IV or a catheter.  She has comforted her baby through the metal rails of a hospital crib.  She has found a way to smile in the face of a child who has endured more medical interventions than the average grown man.

When it comes to medical jargon, she has the vocabulary of a tenured doctor.  She has spent the few moments she has to herself researching her child’s condition.  She is tired, but not weak.  She has broken down, but still keeps pushing.  She has every detail of her baby’s life memorized, and unfortunately, that life has been full of more than just milestones.

Oh, but the milestones.  Maybe they’re few and far between, but they are moments you will see such ease in that mama.  She will recant the details perfectly, as she’s played out the moments over and over in her mind.  She has a thousand videos and pictures of her baby to prove they are perfectly made, even if their diagnosis says otherwise.  You have to understand, the medical mom sees things a bit differently than the average mom.  They get to believe in magic, in miracles, and in prayer because they have given birth to the proof it’s real.  Regardless of what anyone could ever tell her, she has watched her child break every rule and negative expectation.  Her baby is heaven-made.

The florescent hospital lights and multiple cords have become the landscape of her motherhood.  The sound of beeping machines is the soundtrack.  She has become defined by the hard edges of hospital walls and the notches in medicine syringes.

She has used every bit of patience on her child and their needs, so she appears to be short-tempered and lacking social skills.  Her days are full of chatting with therapists or other medical moms, as they are the support system that keeps her standing.  Her child speaks to her in their own special language, and no one will advocate for that baby like she will.

She is a medical mama, and she’s proud of that fact, but no one will ever understand it unless they’ve lived it.

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Please feel free to like, comment, and share. You can follow my daughter’s story here.

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Photo credit to my amazing husband for capturing this moment perfectly. AirBrush_20180813160403.jpg

Scary Mommy

99 comments

  1. Our journey is just starting. He is only 6 1/2 months old, but I already completely understand. Thank you so much for this.

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  2. To know I made and gave birth to that medical mum and all that comes with it, to know unwittingly I’ve gone through all the wonderful times of her childhood not knowing I was preparing her for these times ! to know when I sleep at night ( or try to ) she is ( like all you medical mums ) not sleeping or eating or even thinking straight or barely surviving takes the wind out of my sails , sucks the joy from my days , drains my whole body of energy , of life of ever feeling normal , yes these aren’t pretty words but they are the truth and don’t even lay a breath on the daily crushing feeling of all of you medical mums ! But I have light at the end of the tunnel for I have God and each night I am able to give it all to Him and know that’s where I put my trust and hope ♥️

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  3. Wow, that is life summed up in a few paragraphs. My “baby” isn’t little, she’s 22 but has a severe brain injury from a car accident 2 years ago. This is all our life has been since then. Bless you and all you mamas. It’s true if you haven’t lived it or worked in it it’s just impossible to explain. Thank you for these words put together so perfectly.

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  4. God bless you all on this medical journey and beyond. I took the journey as a single parent when my daughter was one and my son was 2 and their dad had walked out on me. My daughter was a “failure to thrive” baby due to a protein allergy and it took several months of hospital time before we got things on the right track. Now she’s a strapping 35-year-old 5’8″ woman in perfect health!!!

    Stay strong and never doubt you will achieve what you need to get healthy and strong. Prayers from this Canadian Mom who’s been there!! Love, Pamela

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  5. This was so perfectly written. The words to describe what many of us mothers have gone through and have felt, are in their truest form. I’m the mother of a micro-preemie…our 23 weeker. Thank you for sharing this with us all. I know that I needed to see these words and to feel their meaning. ❤

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  6. Very well written!!! I am a medical mom to a now one year old who spent 4 long months in the NICU. He wasn’t suppose to make it after day 6, but God intervened. These words are so touching, and emotional!! Thank you for sharing!

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  7. You just described my life in a way that I haven’t been able too. Thank you for the validation, the strength and the encouragement. I appreciate it!

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  8. My daughter in law is a medical mom she knows more than the doctors remember because you r at speclist 5 or6 times a week little Giddion is still alive because she is willing to do that Gifts is going down some she will work her manic hopefully many times

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  9. Wow, this is exactly my life! I mean my son came full term, but man he is my miracle baby that I never thought I’d be blessed with but God gave him to me! Which I’m forever grateful…he beats to his own drum & I’m so grateful because he unique and special in his own way…which seeing him grow & hit a milestone or two are miracles & blessings. So thank you for sharing this!

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  10. I was that mom, my little girl had TTD, (Thrichthiodystrophy)
    We didn’t know , the docters could not find out what was wrong,and her diagnose after she was 2 years old they said PIBIDS syndrome.
    But i saw the connections each time after she had an x-ray she got worse.
    They didn’t believe me… She died 8 months later suddenly.
    And now after 30 years! the dokters said i was right after all…
    I found her image on the internet…it was a shock, but i am glad that i know now, her life was important, we loved her: Nathalie van Halen, known as patient : TTD1RO, het meisje met het broze haar ( the girl with the bros hair)

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